Hi friends! I’ve recently launched a Substack newsletter: Out of Order: Notes on Chronic Illness. It will be where posts on ME/CFS, Long COVID, and chronic illness live. I will continue to share my experiences navigating these conditions in the context of disability justice. The newsletter will also be a place to practice creativity and courage so we can give the beloved future a fighting chance.
This here smirkpretty blog is not going away! I will continue to publish poetry and other creative writing from time to time. But given the current assaults on science, medical research, health care, and disability rights — and on the very existence of the most vulnerable people in our communities — I expect to be doing a great deal of writing on these concerns. So please come visit me over there. You can subscribe for free or just go and have a look around.
https://shannonelysewilliams.substack.com
As always, thank you so much for reading. It’s so good to know that we are on this ride together.

Shannon, congrats on the launch of your Substack newsletter!
doing what we can under chronic conditions
https://www.poetryfoundation.org/audio/1657112/hope-rustles-in-my-leaves
such a lovely man
https://podcasts.apple.com/us/podcast/ed-yong-wants-to-show-you-the-hidden-reality-of-the-world/id1624946521?i=1000695007458
sick times