Stop the dancing/ We’ll share the whole pie/ The night sky/ And we can share the particles
– Cosmo Sheldrake, “Stop the Music”
If reading chronic illness memoirs has taught me anything, it’s that the surest way to get on a doctor’s bad side is to show up with a condition that doesn’t respond to treatment.
This is why I was so happy to find the Good Doctor.
This Good Doctor is a neurologist, a specialist in my HMO. When I first came to see her last year, she recognized I was talking about Long COVID without needing me to lead her to it. She ordered an MRI when no one else would, had me do cognitive testing, and got me into speech therapy. She’s one of the few specialists who has not let the treatment wasteland surrounding this illness scare her away from trying stuff.
Up until meeting her, chasing care was a game of musical chairs. The song comes on and there’s no choice but to get up and start scurrying for another place to land.
Continue reading “Stop the Music: Notes on Good Enough Care”
Shannon E. Williams 